Athoughts and tap into the wisdom of my support team. Wishing you a very happy and healthy holiday season. Do you remember the day you were diagnosed the end of your diagnostic journey Was it a lonely journey Lately I feel less comfortable with the term journey to describe illness milestones. Preferring to think of a trip as something I chose to do. An adventure with a clear beginning and conclusion that defines a section of the timeline of life. AS feels more like a part of my life than a section of my life.
I was dazzled in a huge conference
AS feels enmeshed in not separate from my lifes journey. If youre like me youve identified some milestones of the disease some negative some positive. Sitting in the rheumatologists office with my wife and hearing my diagnosis for the first time Austria Phone Numbers List is certainly a milestone. Just like the first time we met other people living with AS at a patient meeting. I remember several appointments with my healthcare professionals where I had to explain what EA was because they were unfamiliar with it. There are also memories of specific days with clear AS symptoms long before my diagnosis that were dismissed or misdiagnosed.
I imagined that very little
Even a misdiagnosis that required surgery. Making new medication decisions are vivid milestones for me. In fact there are many memories that . The first time I attended a session on ankylosing spondylitis at the American College of Rheumatology ACR conference was a milestone for me. room with doctors and researchers who are actively caring and doing something about AS. Until that moment was being done for my illness. Clearly it appeared that health care providers did not know much about EA and it was not Argentina phone number list important for enough people to learn more. My own rheumatologist admitted that I would soon learn.